Mark was the bearer of bad news today. He complained a lot about his eye. Mostly that he can't see anything. I even covered his right eye and asked what he could see and he said, "That's just it...I can't see anything." My heart fell. But as my mother keeps saying, "If that's the worst of it, then it's okay." He kept asking about having the doctor come fix it. He's frustrated at not being able to understand fully what's going on and not being able to communicate what he wants.
When I arrived he was fully engaged in occupational therapy. I was amazed at what he could do. I stayed behind him and peeked over his shoulder so that I wouldn't be a distraction. I missed his morning speech therapy, but the doctor said he was reading a little bit. THAT IS AWESOME!!
Today's funny incident happened over dinner. His aid was trying to get him to eat something and he kept saying no. He finally blew on it, stuck his tongue out and did the "spit" noise, all the while with a smile on his face. He did it several times. It gave us a good laugh.
If we walked to the elevator once, we walked to the elevator a 1000 times. He knows how to get out and he wants to go home. He whispers to me to show him the code or the real door that gets him out. He told me several times today that it's ridiculous that he has to stay there. I told him he needed to get better and he said, "That's just it. I am." When I was preparing to leave tonight, he had a girl in each hand and said, "Okay, let's go." It broke my heart to leave him. The silver lining in all of this is that he loves us and wants to be with us.
Please Help
A fund has been set up through Paypal for Mark, Scarlet and the girls.
Go to http://www.paypal.com/. Login to your Paypal account, or just click on the send money tab. You don't have to have a Paypal account to donate.
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Thank you so much for love, concern and prayers on their behalf.
Go to http://www.paypal.com/. Login to your Paypal account, or just click on the send money tab. You don't have to have a Paypal account to donate.
Email account required to donate: ourelectricpunk@gmail.com
If you have any questions or don't want to donate by Paypal, please email us at ourelectricpunk@gmail.com.
Thank you so much for love, concern and prayers on their behalf.
It really is very fortunate that Mark still has eyesight in his other eye, what a blessing. I would have to agree with your mother on that one. Ya never really know what may happen with more time, I believe anything is possible and Mark has done a fantastic job of proving that every day for the past 23 days. Great job both of ya!
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